update #2

PRAISE GOD!!!!!! There have been no changes and the PET scan looked good! We are SO EXCITED to say the least! Thanks for all of your prayers! Please keep them coming. The new plan is to get a repeat (chest) MRI in about 5 months. In the meantime we will be discussing a new clinical trial coming up that is aimed at shrinking the tumor. Sydney once again had an uneventful day with her sedation. It's SO good to be home. We feel like we can finally take a breath! We are looking forward to a few days off with Daddy!

update #1

Sydney had her long awaited (dreaded) MRIs yesterday. She did FABULOUS! Thank God! CCH is a DIFFERENT world! Her sedation was a breeze, literally! She took a few breaths of "gas" and was out in a matter of seconds. All of this is done before any IVs. What a blessing! She didn't have any trouble after waking up or eating! Please keep praying. I'm so thankful that everything went well yesterday. She will go in Thursday morning for the PET scan and then we meet with Dr. Weiss at 11:00. PLEASE PRAY......