January 29, 2009


Sydney's MRI was uneventful - thank God! BUT the tumor is still growing, not at an alarming rate but there has been growth with the last two MRIs, obviously this is not news that we were hoping for. Her scoliosis however is progressing at an alarming rate. Normal curvature of the spine should be 0, up to 15 degrees is still considered within normal limits. Sydney's XRay on Monday shows a curvature of 71 degrees. This is up from 55 degrees in August. We are now at a point that something MUST be done. We will see Ortho again in the coming weeks as well as pulmonary to evaluate lung function in preperation for surgery. The actual repair for scoliosis may not sound that bad to some of you but you must remember that this tumor is actually wrapped around her spine as well. This will NOT be a surgery to remove the tumor ONLY to repair the scoliosis. We've been told by so many different doctors that Sydney is NOT a candidate for surgery that obviously we have concerns.

We know that she is and has always been in God's hands. We know that he can get her through this surgery. Please pray for Sydney and EVERYONE involved in her surgery and care. It will not be a routine procedure. Maybe sometime I'll scan a picture of her Xrays and MRIs - when you see them it's just unbelievable.

Once surgery is over, we plan to start the new clinical drug trial - there has been enough growth to qualify for the study. We had planned on getting her signed up this week but that will be on hold for now. The hope of this drug is to halt tumor growth not to remove it.

Please pray........


January 24, 2009

Sydney's MRI

Sydney's 6 month MRI is this Monday, January 26th (Chinese New Year of all days). Please pray that she does well with her anesthesia and obviously and most importantly that there have been no significant changes. She continues to do well which is a MIRACLE - Praise God!

She also has follow up appointments with both oncology and genetics. We have yet to hear anything about the possibility of repairing her chest wall.

Needless to say it will be a very tiring and stressful day. Please pray for us to be strong and have the faith we need.

If your just finding us, check here for a bit of info on Syd's diagnosis.


January 22, 2009

And the nominees are......

My sweet friend Leslie has nominated me for The Lemonade Stand award! She seems to think that I have a good attitude? When my DH sees this he'll probably pass out - NO KIDDING! So anywho, I need to nominate some people as well. This was SO EASY! These are my favorite most inspiring blogs.

Linny - A Place Called Simplicity

Michelle - Where Laughter Lives

Angie - Bring The Rain

Thanks Leslie!