another praise!

I spoke with Sydney's nurse today and they have decided based on her MRI results that she won't need a f/u appt. until later this year or early next year (the suggestions were Nov., Dec., or January). I think she will get a repeat spinal xray at that time and then meet with Ortho. Please continue to keep her in your prayers.

Thanks and blessings,
Sandy

a PRAISE!

I received this from Sydney's nurse this morning:

"the MRI--obviously, they saw the result of the surgery with Dr. Gordon, which is a substantial decrease in that part of the neurofibroma since last seen on MRI.  Other that than, what I read is that things are pretty much stable from tumor standpoint.  The report states that there is not much change in the neurofibroma which remains, so I guess there has been no growth, which would certainly be good.  They also mention that the narrowing of her trachea is unchanged."

Praise God!

We are still waiting to hear from Ortho......but in the meantime we will rejoice in this blessing!


In Christ,
Sandy

a praise!

Sydney did well with her MRI - it only took about 2 hours! We don't have any results yet, we'll probably hear something next week. So in the meantime we praise God for His continued blessings upon our lives.

Blessings,
Sandy

prayer request

Sydney will be having her MRI this Wednesday the 21st. Please pray for her and for all of those involved in her care. The MRI is scheduled for 5 hours - very long - she will be intubated due to the length of the procedure. Please continue to pray for Chad and myself that everything we do will be in God's will.

Thanks and blessings,
Sandy

Thank God! A praise report!

Dad and Sydney are on their way home after a blessed time together! Sydney did a FANTASTIC job with her appts. including the sleep study! Thank you for your continued prayers. Sydney will be having her MRI next Wed. the 21st.

Blessings,
Sandy

coming up...

Sydney is scheduled for a sleep study this Sunday, July 11th. The following morning and afternoon she will have Pulmonary Function tests and an Anesthesia consult. Pending her clearance by Anesthesia she will be having an MRI July 21st. Appointments with Ortho, Genetics, and possibly CT surgery will be scheduled after the MRI. Please continue to keep Sydney in your prayers. We finally found out the XRay results - her curvature is now  at 90 degrees......Pray for us that we will be in God's will.

Blessings,
Sandy

a small update...

Sydney's appts. went well last Friday. We were able to talk  openly about our concerns. Initially it seemed that the changes in posture were due to "stiff" neck muscles and would be treated with physical therapy. But the xrays showed "some changes". That being said we don't have the official Radiology report and the Ortho surgeon has not reviewed the films. So for now the PT is on hold pending those reports. I would assume that within the next few weeks Sydney will have at least an MRI and possibly a CT/PET  scan. As well as appts with Ortho and Pulmonary. On a positive note Sydney's eye exam showed no changes with regard to her NF1 and she did well with her appts.

Please continue to keep Sydney and her doctors/nurses in your prayers.

In Christ,
Sandy

Appointment time....

Sadly we have noticed some changes in Sydney's posture.....so, she is scheduled this coming Friday for an appt. Please pray with and for us as we find out what is causing the change. Not sure if her curvature has increased or if it's due to lack of muscle tissue from last year's surgery? I have to continue to praise God for all that He has done in Sydney's life and health but I must confess that I'm feeling very guilty right now - have I let Sydney enjoy her seemingly unhindered mobility, have I taken joy in it? I've allowed myself to deny the possibility that a day might come when she  wasn't able to move as freely and without pain. God has cared for Sydney in ways that I cannot imagine. So as I write today please pray that Sydney has a productive appt. pray that her Drs. have wisdom and a heart for God above all. I just want to see Sydney run and play......and take joy in it as I sohould have been doing all along........

In Christ,
Sandy

Happy New Year!

I will be combining the blogs - again! I might post on here every now and again but for now, we are moving. You can find Sydney here. Much love to all of you.

In Christ,
Sandy