Happy Halloween!

 

And we're off....

to celebrate birthdays! Neil and I share a birthday - how cool is that! So we planned our Fall break so we could celebrate! We SO wanted to take a trip to Disney but it was just TOO last minute. We're hoping to go next year. Syd was a little disappointed that she didn't get to see the castle on the Mickey boat. So anyway, we're going to Gatlingburg for a few days! My MIL had lots of hotel points so we got 3 nights for FREE - SWEET!

Blessings and thanks for all the wonderful words of encouragement. I have truly felt your prayers.

Sandy

A flower for you...

 

to thank each and every one of you that has lifted Sydney up in prayer. I am so very grateful for each one of the comments. A few of you asked to post a link to the blog - please feel free to do so - we need all the prayers we can get. I realize that some of you are dealing with your own struggles, please know that I am now praying for you as well.

Please continue to pray for our sweet girl. And again, we are so grateful for your prayers.

Of course, a BIG THANK YOU to Leslie

Blessings,
Sandy

Do not be afraid, just believe and she will be healed.
Luke 8:50

This is who you're praying for....

This is our sweet girl, Sydney! You'd never know in a million years that anything could possibly be wrong. But Sydney has NF1 with a VERY large plexiform tumor. This tumor is around her aorta, her left lung, her trachea, and her spinal cord. She also has a pretty significant concave chest. There is no cure and the only treatment option available is surgery and she is NOT a candidate for surgery. It would be TOO risky for her. As you can see God already has his hand on her. Just look at her...oh my, she's just a doll! Thanks for stopping by and please add her to your prayers.

Blessings,
Sandy

 

 

 

The Pulmonary visit....

We met with the pediatric Pulmonologist today. His bedside manner was good. But he is a Dr. and when a Dr. with his expertice tells you that he's never seen a tumor like this then you realize all over again what a terrible diagnosis this really is. I'm tired and at a loss for words right now. They will have a meeting to discuss Sydney's case in the coming weeks but it is in his opinion that surgery to repair her chest would be too risky for her and could potentially cause more harm than good. So really nothing has changed, just the wording and bedside manner. Sydney continues to do well. I just can't help but to feel sorry for all of us right now. I know that I shouldn't do that - so please keep praying for all of us.....

Blessings,
Sandy