a small update...

Sydney's appts. went well last Friday. We were able to talk  openly about our concerns. Initially it seemed that the changes in posture were due to "stiff" neck muscles and would be treated with physical therapy. But the xrays showed "some changes". That being said we don't have the official Radiology report and the Ortho surgeon has not reviewed the films. So for now the PT is on hold pending those reports. I would assume that within the next few weeks Sydney will have at least an MRI and possibly a CT/PET  scan. As well as appts with Ortho and Pulmonary. On a positive note Sydney's eye exam showed no changes with regard to her NF1 and she did well with her appts.

Please continue to keep Sydney and her doctors/nurses in your prayers.

In Christ,
Sandy

Appointment time....

Sadly we have noticed some changes in Sydney's posture.....so, she is scheduled this coming Friday for an appt. Please pray with and for us as we find out what is causing the change. Not sure if her curvature has increased or if it's due to lack of muscle tissue from last year's surgery? I have to continue to praise God for all that He has done in Sydney's life and health but I must confess that I'm feeling very guilty right now - have I let Sydney enjoy her seemingly unhindered mobility, have I taken joy in it? I've allowed myself to deny the possibility that a day might come when she  wasn't able to move as freely and without pain. God has cared for Sydney in ways that I cannot imagine. So as I write today please pray that Sydney has a productive appt. pray that her Drs. have wisdom and a heart for God above all. I just want to see Sydney run and play......and take joy in it as I sohould have been doing all along........

In Christ,
Sandy