Sydney's MRI was uneventful - thank God! BUT the tumor is still growing, not at an alarming rate but there has been growth with the last two MRIs, obviously this is not news that we were hoping for. Her scoliosis however is progressing at an alarming rate. Normal curvature of the spine should be 0, up to 15 degrees is still considered within normal limits. Sydney's XRay on Monday shows a curvature of 71 degrees. This is up from 55 degrees in August. We are now at a point that something MUST be done. We will see Ortho again in the coming weeks as well as pulmonary to evaluate lung function in preperation for surgery. The actual repair for scoliosis may not sound that bad to some of you but you must remember that this tumor is actually wrapped around her spine as well. This will NOT be a surgery to remove the tumor ONLY to repair the scoliosis. We've been told by so many different doctors that Sydney is NOT a candidate for surgery that obviously we have concerns.
We know that she is and has always been in God's hands. We know that he can get her through this surgery. Please pray for Sydney and EVERYONE involved in her surgery and care. It will not be a routine procedure. Maybe sometime I'll scan a picture of her Xrays and MRIs - when you see them it's just unbelievable.
Once surgery is over, we plan to start the new clinical drug trial - there has been enough growth to qualify for the study. We had planned on getting her signed up this week but that will be on hold for now. The hope of this drug is to halt tumor growth not to remove it.
Please pray........
Blessings,
Sandy
January 29, 2009
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6 comments:
I am definitely praying for Sydney. Thank you for keeping us informed.
Keri
I'm sorry the news was not as good as you had been hoping for. Prayers for you and your family.
I am so sorry that the news was not what you wanted. we will all keep Praying for her and your family.
Praying for your family. May God watch over you.
God can move mountains...Dont give up hope. She is a priceless treasure! Seeing her smile melts my heart...I will continue to pray.
(((HUGS)))
from Tennessee,
Michelle
I am so sorry to here about this precious little angel going through this, i will keep Sydney and her family in my prayers. It is so good to read and know that you trust in God, He is the one in control....May God Bless your family, stay strong and keep the faith. It breaks my heart to know of a little one going through this, i can't imagine it being your child, keep your trust in God, you are never alone.
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